Day 10, post-op:
Still a fair amount of pain/discomfort in left arm, particularly on the inner/underside of my left arm – the very skin seems hypersensitive and painful to touch – and I’ve definitely entered the restless, ‘I want to do it but I can’t quite‘, antsy and tired stage of recovery.
‘I wan tu go I wan tu stay. I wan tu dark I want tu lyt I wan tu day I wan tu nyt. I want tu plus I want tu minus I wan tu big I wan tu littl I wan tu aul I wan tu nuthing.’*
Meanwhile, I have my upcoming appointments on Tuesday with my oncologist and surgeon (Dr.s Khan & Harlow, respectively), and I’ve been working on the usual question/information list.
Here’s the draft – please, if you have any feedback, or see something I’m forgetting, let me know.
Questions re: pathology report/chemotherapy
Type of cancer: Invasive Ductal Carcinoma
ER positive? 60%
PR positive? 40%
HER 2 positive? No
Cell dif. 1 -3 (1? “Well”)
Mitotic 1-3 1
Cell Nuclei 1-3 2
Tumor stage – T1c
Cancer Stage – 1?
Considered ‘interval’ cancer?
Other tests – Oncotype?
Persistence of seroma? Associated pain in left arm?
Things I can do to alleviate this? (ie, exercise, rest, heat, cold, etc)
Resuming vitamins? Medications/Supplements to avoid?
Thermal Imaging? Other imaging options?– opinion of
Likelihood of recurrence:
With chemotherapy, radiation, adjuvant therapy:
With radiation and adjuvant therapy:
Likely time span of treatment & recovery
Written treatment plan – for dealing with plane tickets
If not recommended, why not?
Time span – frequency & duration of treatment?
CMF regimen (cyclophosphamide, methotrexate, & fluorouracil)?
Adjuvant therapy with SERM (tamoxifen, eg)? Other possibilities?
* quote (slightly altered) from Riddley Walker by Russell Hoban